No cure for Mommys rare disease Two little boys & their struggle to remain a family!
Description:
Imagine a tunnel with no light at the end. Terrible things happen to good people everyday, but what if a family was struggling to survive through almost every terrible thing you could possibly imagine, all at once. This is the reality for one amazing little family in Dallas. The determination of a mother and two little boys to remain together as a family, who have lost everything, with no means to obtain anything again. A family who has been lost in the loopholes of the system and the unwillingness to provide assistance by every federal, state and local agency. A family forgotten by the community and left with small hopes of survival. Despite the unimaginable struggles Kellie and her two sons battle everyday, their courage,hope and love for one another, find a way to make it through another day. Kellie is a single mom living with a rare chronic disease of the autonomic nervous system, Postural Orthostatic Tachycardia Syndrome. There is no cure for her illness and no FDA approved drugs for treatment. Check out www.dinet.org to learn more about this terrifying disease. She almost lost her life in 2008 during pregnancy because of this disease and after weeks in the hospital, was forced to deliver her youngest son 2 months early. She cannot possibly work, yet Disability doesnt recognize the diagnosis, so income seems unobtainable. She uses every ounce of energy she has in loving and caring for her children. Her oldest son battles an immune disorder and constant illness. The exposer to germs in public school, catching every cold most kids dont and his inability to fight infection kept him constantly sick, so he now has to be home schooled to ensure he stays as healthy as possible. Imagine being 11 years old and not being able to be around other kids, going to at least 4 doctors appts. every week and the inability to help the mother he loves so much. It's a lot for an 11 year old to handle and it's taking an emotional toll on him quickly. Her youngest son, 17 months old, born 2 months premature, has medical issues as well. The ventricles in his brain are dialated and he has an over amount of fluid in his brain. That's only the tip of the iceberg! Instead of waking up to presents from Santa, they instead lost thier home on Christmas Eve of 2008 to domestic violence by the father. With no other options, they are forced to stay with emotionally and verbally abusive family members and without the help of people like us, this family's future has no hope. Other than clothes and a few toys, they have nothing. Please help this family to get a place of their own to call home and a reliable vehicle to get to the numerous doctors appts. that fill up their week. They need the chance to be a normal family and a little happiness to push them along. Even the smallest donations will make a difference, insignificant to most others. Please address the above e-mail with any questions or suggestions to help.
